Rare Disease Research: Slides (2)
Slides three, four, and five of this presentation have been populated with the programmatic areas and funding information for EURORDIS, RDI, and IF. These non-profit organizations were established to combat rare diseases across the globe.
- This organization was founded in 1997.
- The revenue for 2018 was € 6,497,858. This is equivalent to $7.2 million.
- The main source of funding are the EURORDIS’ members.
- The French Muscular Dystrophy Association (FMA) has also been a contributor.
- Members that assist in funds include EURORDIS.
- Some corporate contributors include CSL Behring and Pfizer.
- Yann Le, the current CEO, initiated RDI in 2009.
- This organization has been able to federate 884 patient organizations and represents over 4000 rare diseases across 72 countries.
International Federation for Spina Bifida and Hydrocephalus (IF-SBH/IF)
- The total income for 2018 was (€ 1,228,909.52) $1.36 million.
- IF is funded by Rights, Equality, and Citizenship program of the European Union, the Atlas Alliance, Bühler, Nouryon, and Mühlenchemie.
- This organization was founded 1979.
Our research team was unable to provide Rare Diseases International (RDI)'s income. We searched for this information through annual reports, medical publications, and any news sources. Our thorough analysis of their website and web presence was also unable to determine how much income they collect. As a triangulation, we provided information on size based off their expansion and the number of countries where they are active.
Programmatic areas for each organization has been incorporated in the overview and focus, accomplishment, and future goals for each organization.